ME/CHRONIC FATIGUE

National Organisations
www.afme.org.uk Action for ME webpage providing information, telephone support, membership details and online services including counselling.
Telephone: 0845 123 2314
Address: Third floor
Canningford House
38 Victoria Street
Bristol
BS1 6BY

www.meassociation.org.uk ME association site very good for medical information.
Site also offers information for carers.
Telephone: 0870 444 1836

www.meresearch.org.uk  (MERGE) Information on studies funded by MR research UK.
Telephone: 01738 451234
Address: ME Research UK
The gateway
North Methven Street
Perth
PH1 5PP

www.nmec.org.uk The national ME centre and centre for fatigue syndrome, webpage explaining the centre, treatments and patient stories.
Telephone: 01708 378050

Local support groups.

ME North Devon Group (North West Devon and Cornwall)
Telephone 01409 253191 or 01884 881361
Address: The Beaches
Park Close
Holsworthy
Devon
EX22 6HR

Exeter and East Devon
www.rainbow-me.org.uk Exeter based support group offering information on managing ME, research, books and forth coming meetings.
Telephone: 01392 433366
Address: Tina Norman
PO Box 465
Exeter
EX1 9AN

South Molton ME Group (North East Devon)/Mid Devon
jacquiftmn@ukonline.co.uk
Telephone Ann Dixon 01769 572738 or Jacqui Footman 01769 572207
18 Mole Ridge Way
South Molton
EX36 3BE

PALS (Patient Advice and Liaison)
Exeter - Telephone: 01392 284951
North Devon - Telephone: 01271 341555
Mid Devon - Telephone: 0800 0730792

Internet discussion, support and chat.
www.brainfog.org Website offering friendship and support.
www.mechat.co.uk Email support group for patients, families and carers.
www.melovedones.org.uk Site for carers
www.mesupport.bigstep.com An informative ME website including message forum.
www.brame.org Blue ribbon for awareness of ME.  Telephone: 01493 393717
www.metips.co.uk ME tips collection
www.foggyfriends.org

International Organisations.
www.co-cure.org Information on research and medical theories.
www.cfids.org Excellent US website with regular research reviews.
www.aacfs.org International Association for Chronic Fatigue Syndrome.
www.immunesupport.com Worlds largest Fibromyalgia and Chronic Fatigue Syndrome site.

Benefits information and advice
www.benefitsandwork.co.uk
www.drc-gb.org The Disability Rights Commission.
www.thesolicitorsroom.com In association with the Disability Alliance, a panel of solicitors has set up a website to provide disabled people with access to legal advice.
www.adviceguide.org.uk Exeter Citizens advice bureau
Telephone: 01392 201210
Wat Tyler House
3 King William Street
Exeter
EX4 6PD
www.adviceguide.org.uk

Barnstaple Citizens advice bureau
Belle Meadow Court
Albert Lane
Barnstaple
EX32 8RJ

Government information sites.
www.expertpatients.nhs.uk Expert patient programme.
ww.dh.gov.uk/PolicyAndGuidance/HealthAndSocialCareTopics/LongTermConditions/fs/en National service framework for long term conditions.
http://www.nice.org.uk/page.aspx?o=368978  National Institute for health and clinical excellence (NICE), guidelines for health professional regarding CFS/ME. These guidelines are still under consultation.